Showing posts with label yoga. Show all posts
Showing posts with label yoga. Show all posts

Friday, July 29, 2016

Find What Feels Good: Nicaragua


I walked briskly around my gate at the airport, unable to be still. My mind was racing… honestly I cannot even remember a single coherent thought. Just… I need someone to pray for me. I took a photo of my airplane and posted it to Facebook as quickly as I could so many would see and perhaps say a prayer for me. For my safety. 
Dad took this photo of me as I went through security. I was crying.

Photo of my plane

For a split moment, I looked back from where I came and thought, “I am going to run out of this airport as fast as I can.” I looked back at the line of passengers waiting to board our airplane. “No, no, no, no, no. I can’t do that now. I’ll never forgive myself. You’ll be fine. Get in line.” I walked up toward the front, cutting in line, trying to get myself onto the plane as quickly as I could. 

I made my way down the narrow aisle of the plane and found my seat. I was here now and there was no going back. 
“If you need to disembark the aircraft, this is the last time.” 
“…but what if —- Shh.” 
“The cabin doors have been shut.” 
Okay, I’m doing this.” 

The thoughts dissipated and I just accepted. I was on my way to Miami, then to Managua, Nicaragua. My first international trip and I was alone, though I didn’t feel alone. I frantically purchased the on board wifi so I could send messages to my family throughout the flight. “What if I get nervous? Anxious? What if I feel unsafe?” I thought that perhaps just telling them how I was feeling would ease my frenetic mind. 

Earlier that morning, I had woken feeling oddly confident. I felt ready to conquer some fears, to trust that all is well. I say that as often as I remember, “All is well.” For months and months prior to this trip, I was tormented with anxiety. The fears, the what if’s, the irrational thoughts, and the never-ending racing of my mind. For most of my life, I thrived on my alone time, but for the last 6 months, being alone was a source of stress, anxiety, and panic. I lied and manipulated just so I could feel safe and minimize my alone time. This trip was a test. It was a step of faith. It was a great healing journey. 

The flight was smooth as glass. God held the airplane in His hand. I don’t remember a single bump. I began to feel excited. A friend was waiting for me in Miami. We landed gently and I exited the plane. I already started to feel excited and less lonely. Sarah was waiting for me at my gate.
Sarah waited for me at my gate and took this photo as soon as I appeared 

Sarah and I on our flight to Managua, Nicaragua

The flight to Nicaragua felt so short. Sarah and I chatted the entire time. I had known Sarah for a couple of years, but we never met in person. She is one of those people who I want to be like: she’s beautiful, kind, genuine, sweet, nurturing, gentle, creative, nerdy, with a touch of goofy. She’s one in a million. A beautiful wife and an awesome Mom of two. (I cant sell her enough). She doesn’t know how much I needed her this trip… how God blessed me with her. 

Sarah, my inspiration
I felt safe. I felt protected. When we arrived, Sarah and I walked confused around the airport, nearly forgetting that we couldn’t leave the airport until we went through customs. Once we stepped out of the Managua airport, the impossibly hot, sticky, humid air hit me in the face. A nearby storm was darkening the sky. The airport felt so small. The buildings nearby were short, the houses were open shacks made of aluminum. There was color everywhere. 

Sarah and I were on the noon pickup along with a big handful of other ladies, all headed to the same place: Maderas Village. During the first hour and a half, all of us were so overstimulated, eyes wandering everywhere. From horses, carriages, cars weaving in and out of traffic, colorful school buses, greenery as far as the eye can see. A deluge overtook us on the drive. Lightning flashed in the distance and the day of travel and flights began to wear on us. We all grew very quiet and fatigued. After 3 hours of driving, and a transfer to a truck in order to climb the rocky dirt hills to the village, I realized how far away I was from the normal ‘civilization’ with which I was comfortable. “But what if something happens…” … “Not now. There’s no time to think that way.” 

All in all, I didn’t feel so far away from home. It was about 6 hours of flying, and 4.5 hours of driving. I felt that, “Well if something were to happen to me, at least my family will be able to make it here… But, what would happen?! TRUST.” 

When we finally arrived at Maderas Village, I remember feeling a sense of uncomfortable acceptance. I had to just accept - I made it here. Im not leaving for 6 days. Just take it in. “Take it all in. Trust. trust. trust.” What a pleasure and an honor it was to meet new people, to see faces again that I hadn’t seen in a year, and even finally meet people I had talked to online for years! The first thing I did was walk down the rocky hill to the beach. Although cloudy and a bit drizzly, I didn’t want to waste time. I wanted to see and touch the Pacific Ocean. (It feels the same as any other ocean, Im sure). The tide was powerful. The rocks on the beach were colorful and vibrant. It was still quite rainy. 





Trying to sleep was a struggle. Thank goodness for wifi. I watched Bob Ross’s The Joy of Painting on Netflix to help me sleep. With the time difference, I knew my family was already sleeping by the time I went to dinner. I couldn’t reach out and it was okay. I knew I was safe. I woke every morning sometime between 3:30-4:30am to the sounds of unfamiliar birds and howler monkeys. Although I was very tired, I enjoyed it. I awoke that first morning with a nervous eagerness. 



Yoga Space
What if you pass out and die during yoga because it’s too hot?! — Not now.” 

I felt oddly nervous during the first morning yoga class. “Oh no, if I’m feeling anxious during yoga, Ill probably feel it the whole trip. What if I have a meltdown? Who can help me? — NOT. NOW…God, thank You for this opportunity. Thank You for this experience. Thank You for this gorgeous place. I know I’m safe. I trust You.” 

“…” 

Thankfulness quiets it all. 

My favorite moments on the trip were the times that I just sat in the main house talking to my fellow retreaters. I recognized some of their names; some I didn’t, but learning about them was a blessing. We all came with stories, baggage, insight, beauty. These people felt like my tribe, my family, my community. I felt like I belonged. Part of my aversion about the trip was, “Im going to be the only chubby, meat eating faux yogi there.” And, I wasn’t the only person feeling that way. Some admitted, “I thought everyone would think I was a fraud. I’ve only done yoga for a few months and only a couple times a week. And I love beer.” 

Sweet Lindsey hugged me and said, “We were on the same flight from Miami and when I saw you, I thought, ‘She’s so open. I don't measure up to her.’” It was these things that changed me this trip. We learned so much about each other. We all have our trials and shortcomings and none of us are above or below them. We all have pride and all need to humbled in some way. We’re all so similar, and more than we think. 






Then, I got sick. I left the beach one afternoon and as I was walking back, I felt like I was going to faint. My stomach was in knots and I felt weak. I managed to make it back to the room - by the grace of God - and I was down for the count. One negative thought turned into a catastrophe… a snowball into an avalanche. “I’m dying of a weird Nicaraguan disease. What if I need a hospital?! Ill die before I even reach one!” 

It was then that I began to miss my family and want to go back home. “Oh gosh… so many days left… how can I handle this?” The next morning, I was so weak. I knew that a yoga class was impossible for me, so I stayed in. Once I felt the strength, I managed to lay out my mat in the small yoga room upstairs in my communal casa and stretched for about half hour. Everyone was at the yoga hut up the road. It was the first time I was really “alone” since I arrived. Usually a source of panic for me, I was able to ignore most of the irrational thoughts. The, “You are unsafe by yourself” thoughts. I knew I had to just take care of myself. I laid on the porch of the casa and read for awhile. A friendly dog and cat of Maderas Village came and rested next to me. 


Walk to the beach



Beach day

Gentle morning stretch

When I appeared at lunch, I learned that others were feeling ill too. I was given water, a packet of powdered greens, and some tea. Within minutes, I started to find my energy. I felt safe. My roommate Sarah (bless her heart) is a nurse. She gave me some tips to stay hydrated and gave me her ginger tea. 

Later that evening, I was feeling well enough to join the group in a short (but insanely uphill) walk to the neighboring hotel for “Taco Tuesday.” As I journeyed up the hill with my comrades, I was hoping that I had the strength in my body for it. Nervously walking up one foot in front of the other in the hot, humid sun, it occurred to me… an epiphany of sorts: “I’m here for a yoga retreat celebrating my practice while walking up a steep hill. Yet, it’s thanks to yoga that I am even ABLE to climb this hill.” I walked a bit faster. A bit more pep to my step. I walked to the front of the group. That evening, we danced and sang. I was not myself at first - (in all the videos of me from that night, I have my arms crossed while dancing: obvious sign of protecting myself) - but I loosened up a bit later. 

Hulakai Hotel for Taco Tuesday




Dance Party
This was the first trip where I felt like I didn't have to force myself to do anything. I could finally just be. If I wanted to do something adventurous, I could. If I wanted to do something uneventful and silly, I could. I finally felt like I could just be… and no anxious thoughts could distract me. 

On our final morning of yoga, I remember the devastating feeling that I wouldn’t see that yoga space again - perhaps ever or for a long time. I looked into the lush jungle surrounding the space and tears welled up in my eyes. “I needed every moment of this place.” The tears came and I just let them come. If there’s something I learned in my yoga teacher training, it’s that we are so boarded up. We apologize for crying, for venting, for feeling a certain way, but we are being genuine. Open. We should be bearing our souls to each other. I believe that this bottling up, being closed, and allowing walls to be built so high is a symptom of our pride. We can’t be weak, we can’t be emotional, we’re better than that. It’s a plague in our society. An epidemic. 




The final afternoon and evening of the trip, the retreaters and I traveled in a yacht up the coast of Nicaragua with Costa Rica’s shadow behind us, a looming volcano in the distance, a high surf, spying the disappearing beach every time a wave rolled in. I’ve always been frightened of deep water where the bottom can’t be seen. And I actually swam in the ocean, unsure of the feet of water beneath me, and actually felt safe. Next time, I want to swim out farther. I can be brave too! 

Volcano
FWFG NICA on a Yacht



Sarah and Me
Adriene and Me
San Juan Del Sur

Me, Adriene, Sarah
My tribe


I couldn’t sleep that night. Anxiety from the next morning's upcoming flights and trips was gnawing at me. I was up all night. I kept washing my face in the bathroom, convincing myself that all will be well. "All is well." I watched more Bob Ross and finally dozed off. I was happy to be on my way home. I missed my family, my boyfriend, my own bed. I was sad to leave Sarah in Miami. My dear friend - a Godsend. My security blanket. 

Nicaraguan jungle
I left Maderas Village at 7am and made it back to my home at 1am the next morning. I slept like a baby. I woke feeling different. I was different. I was changed. 

I was happy to discuss the trip with my family, but I began to feel down. The down lasted for weeks. I felt low. I thought I was sick, but now I know, it was post-trip depression. I realize after being in Nicaragua, even for such a short time, I hate the way we live here. We are closed off, private, uncomfortable around our neighbors, unfriendly, and GOD-FORBID the doorbell rings. Everyone fights over who isn't going to answer the door. In the village, I knew what was going on with everyone: who was anxious, who was homesick, who needed alone time, who had traveler's diarrhea. This openness among the village, with people who truly just want to wake up every day as a better person - THIS is what I want for my life. I want openness. I want freedom. 

Sure, I have struggled with anxiety since I got back home. The thoughts still happen. The fears still gnaw at me. I have moments where I can't sleep, where driving alone is uncomfortable, where I can't figure out why I'm nervous. But - I talk about them. I'm open about them. "It means you're growing when you feel fear." -Hillary Larson 

I must REALLY be growing. 
* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *
"Hear my prayer, O Lord;
    listen to my plea!
    Answer me because You are faithful and righteous.
Don’t put Your servant on trial,
    for no one is innocent before You.
My enemy has chased me.
    He has knocked me to the ground
    and forces me to live in darkness like those in the grave.
I am losing all hope;
    I am paralyzed with fear.
I remember the days of old.
    I ponder all Your great works
    and think about what You have done.
I lift my hands to You in prayer.
    I thirst for You as parched land thirsts for rain.
Come quickly, Lord, and answer me,
    for my depression deepens.
Don’t turn away from me,
    or I will die.
Let me hear of Your unfailing love each morning,
    for I am trusting You.
Show me where to walk,
    for I give myself to You.
Rescue me from my enemies, Lord;
    I run to You to hide me.
Teach me to do Your will,
    for You are my God.
May Your gracious Spirit lead me forward
    on a firm footing.
For the glory of your name, O Lord, preserve my life.
    Because of your Faithfulness, bring me out of this distress.
In your unfailing love, silence all my enemies
    and destroy all my foes,
    for I am Your servant.”
Psalm 143,
Written by King David 

Monday, July 20, 2015

The Butterfly in my Throat : Good things come to an end

A day at the beach. Summer 2014
The Greatest Summer. 
It was the happiest summer of my adult life up until that point. I was enjoying the company of friends, meeting people, making new friends, going out a few times a week, spending every day outside, getting stronger, and living a healthy life. I felt that I had a sense of adventure. I was doing things that I had never done before, simply because I stepped out. I was experiencing new, amazing things. 


Horseback riding. Summer 2014.
I was also job hunting and preparing for the coming autumn months, hoping that I'd be working by then. I even started to dream again. I envisioned myself in a cute apartment with a decent job, writing music in my free time, finishing my masters degree and becoming a yoga teacher. I felt I was on the brink of independence and freedom. 

I remember having a long chat with a friend of mine on the phone. He said, "Maybe you feel better and you're happier, but you actually are responding to me faster and better. It is like your brain is working to full capacity now!" I laughed and teared up. It was a wonderful thing to hear. Full body health!


Yoga practice. Summer 2014.
Once mid August rolled around, life got a little complicated. My Grandfather was getting very sick and was deteriorating quickly, my cat got injured and almost died, two infant kittens that my family rescued died, and I was struggling with the seemingly nonexistent future of my romantic relationship of nearly 3 years. Stress definitely gnawed at my family and I, but we managed. I had some wonderful support from dear friends and family. God was faithful. 

All good things must come to an end, I guess? 

With thyroid treatment, the goal is to destroy the gland enough where it cannot function on its own anymore. Daily synthetic thyroid hormone would be needed in that case. I expected this result from day one. I hoped that the doctors would hit the jackpot and my thyroid would be balanced; just enough where I wouldn't need medication every day for the rest of my life. Of course, that is a super rare situation. 

Destroying a hyperactive thyroid and treating it as a hypoactive thyroid is safer and apparently easier. There is less risk. (With hyperthyroidism, long term problems are always an issue. Heart problems, osteoporosis, issues with pregnancy, and long term antithyroid drugs cause a slew of other issues as well. There are no long term side effects of synthetic thyroid hormones). I was told that it could take a long time for my thyroid to finally become hypothyroid. It was 4 months and I did not have any symptoms of hypothyroidism yet. 

Early September rolled around. I felt good, but I thought that allergies were really plaguing me. I felt pretty tired, hazy, and a bit foggy. I also thought that my thyroid hormones were possibly dipping too low. The time for blood work testing came and a follow-up appointment with my endocrinologist. My heart rate was resting at 120bpm when they took my vitals at the appointment. My blood work results were reviewed. "You're hyperthyroid again."  What I wouldn't give for it to just have been allergies!

The treatment was not enough. The nuclear medicine doctors had not taken into account the size of my thyroid. It had metabolized the radioactive iodine much too quickly for it to have worked sufficiently. "You have to go back on an antithyroid medication and make a decision about whether to do radioactive iodine treatment again or have surgery to remove the gland." I remember my doctor said, "Smile! You look so upset. You're going to be okay. I'm sorry."


On the drive home, I didn't think about anything. I didn't feel sorry for myself. I didn't feel empowered. I felt nothing. I think I may have cried a little when I got home. I felt so defeated when I stopped at the local pharmacy to pick up my antithyroid medication again. I was on methimazole and a beta blocker again. Same pills from 5 months earlier. 


I thought that by 2015, I'd have a life. A job, an apartment, dreams fulfilled. All of it was on hold again.


Biking with my cousin (right)
Despite the news, I still had just enough energy to enjoy myself. I went to faires, spent time with friends, and still felt a sense of adventure. Anxiety tried to creep in, but everything I felt, I had felt before. I knew all of my symptoms well. I knew that I wasn't in danger. I tried my best to ignore them. I tried my best to enjoy myself. Treatment, although insufficient, was enough to make my life more comfortable. It had helped.


Me (right) sliding with my Mom (left) at a faire



Me (right) and a friend (second from right) at a Renaissance faire
Me (top left) with friends and family at an Apple Harvest Festival

Life Changing October.
All of my symptoms returned, but not to the same severity. My goiter returned, albeit not as large as before. My eyes bugged out, though they were not as prominent.  

Within a couple of weeks, my life changed entirely. I was having nightmares constantly and feeling deep panic and stress. One night, I woke after a nightmare with an intense feeling that I needed to ask God's forgiveness. In my frustration during all the years of disease, I had blamed Him many times. I said many things to Him out of anger. I felt a desire to be closer to Him. It was a very healing moment for me. 


After months of debating and feeling a divine push, I decided to end my romantic relationship of 3 years. A couple of days after, my Grandfather was put in hospice care. A week later, he passed away.


My Grandfather and me
I spent most of my autumn with my Grandmother, my family, and my best friend. I went on a few dates here and there, met a couple of new people, and spent more time out of the house. I decided to do another radioactive iodine treatment. 

I began to prepare myself. I started an ashtanga yoga practice (6 days a week) to challenge my body in new ways and build strength before my treatment inevitably wore me out. I was the strongest and most physically fit I had ever been up until that point. 

Preparations.
The treatment was to be done at a university hospital. (The last treatment was done at a local hospital). I needed to be on a low-iodine diet for 2 weeks and off my antithyroid medications for at least a week. I was scheduled for tests and scans. The treatment was scheduled for January 9. All of the preparations needed to happen during the week of Christmas and New Year's Eve. 

There are few things more frustrating than going on a low-iodine diet during the Christmas season. (Low-Iodine Diet) No egg yolks, no dairy, no salt, no seafood, no soy, no chocolate, etc... THERE IS SOY AND SALT IN LITERALLY EVERYTHING. My family prides themselves on making amazing European foods and desserts. Needless to say, I was miserable. However, I took the diet extremely seriously. I wanted this treatment to work. I bought only organic food and refused to eat anything that I did not cook myself. I remember spending the afternoon with my Grandmother one day. She tried to make me lunch and I kept refusing. She ended up making a salad but was mortified when she couldn't season it with salt. She even froze her homemade Christmas desserts for me to have when my diet was over. 

I made quick oats every morning for breakfast with banana, raw nuts, raisins, and honey. I ate a salad with poached egg whites for lunch, and quinoa or basmati rice, steamed vegetables, and sometimes I added a very small amount of organic chicken for dinner. I cooked a lot of food in vinegar to imitate saltiness. Consequently, the diet made me feel so good, but the level of deprivation was beyond irritating. Everyone around me was eating pastries, baklava, rice pudding, and cookies. I was mostly annoyed that I couldn't eat cheese, which is my guilty pleasure! 


I left this note on the fridge to remind me: 

My cousins and I took a spontaneous trip up to Boston a few days after Christmas, where we met up with some friends. I had to pack a backpack with a day's worth of food in it because I could not trust eating at restaurants. It is not recommended that one eats out on a low-iodine diet. I had a lovely time, but on the way home, I was so hungry that I HAD to stop at a gas station for something to eat. Thankfully, they had coconut chips with no salt! 



Me (bottom left), cousins, and friends in Boston

New Year's Eve. 
I was planning on taking a solo trip back up to Boston to celebrate New Year's Eve, but I was off my medications, and traveling made me really anxious. Although I was not feeling as uncomfortable and sick as I expected, I still felt so tired, worn out, and foggy. I felt too sick to drive long distances. I hoped to enjoy my New Year's Eve. The last one was spent sick in my pjs, crying, and writing goal lists. I needed something more. I needed a celebration to remind me that my life was going in a better direction. 

Two friends from Boston surprised me for New Years and came down to my neck of the woods, got a hotel, and we had a little personal party. We watched a funny movie, played a game, ate snacks (I had to bring myself raisins, unsalted nuts, and raw vegetables) and we watched the Times Square ball drop. I finally had a celebration! I was so amped up for 2015. 

Treatment.

My radioactive iodine treatment was quickly approaching. Before my first treatment, I had hoped that the doctors would find that super rare, sweet spot where I wouldn't need synthetic pills for the rest of my life. Come second treatment time, I wanted the doctors to nuke my thyroid so much that no piece of it existed. I really didn't want to do this again in the future and a single pill a day was fine with me. With hyperthyroidism, I took many supplements on top of my 5-6 prescribed pills a day just to manage symptoms. Melatonin to help me sleep, colostrum to help my immune system and joints, glucosamine chondroitin for joint pain, Zylet for dry, inflamed eyes, natural supplements for thyroid function... From all of that to one pill a day is a miracle. 


My pills & supplements. Photo from January 2015
The week of treatment, I headed up to the university hospital to take a small dose of radioactive iodine for tests. 4 hours later, I returned to the hospital to have a thyroid uptake done. (A thyroid uptake measures thyroid function). The next day, I returned to have a 24 hour thyroid uptake and to be scanned. The rules and procedures were followed very strictly at this hospital. I couldn't have any liquids brought into the exam rooms with me. I was asked to urinate before being seen by the doctors to eliminate any radioactivity in my bladder from showing up in the scans of my neck. Everything was so spelled out. I deeply appreciated all of this. I felt like I was in better hands.


January's uptake results showed a very hyperactive thyroid
Thyroid scans: Jan 2015
2 days after my scans, I was on my way to get my actual treatment dose. I went alone this time. Worlds were different from treatment day May 9, 2014 and treatment day January 9, 2015. I had less fear, less anxiety, a lot of support, so much peace, and I felt God's divine presence near me the entire time. I always held onto the reins so much with my disease. With treatments like this, where the outcome is not always known and the timing is always random, you have to live presently and let things happen. Let go of the control, let God do what He will, and just be. 



This time, the dose was bumped up to 15 millicuries (11 last time). I wasn't nervous, but once I was led into the nuclear medicine department's room next to the lab, I got a little jumpy. The technician gave me a brief lesson on radioactivity, and even used a Geiger counter to explain how far away I will have to stand from everyone around me for the few days following. Doctors and technicians filtered into this tiny room, shaking my hand, giving me the rundown of the days after treatment. Same as before: Suck on sour candy, drink a lot of fluids, stay an arm's length away from others, flush the toilet twice, do laundry separately, keep my toothbrush in my room, spit close to the drain, use disposable plates, utensils, and cups, keep on the low-iodine diet for 2-3 days longer. 

I was given gloves to wear and a bottle of water. The pill was brought out in a little tube. I remember shaking a little bit as all the doctors and technicians watched. I stared at the pill for a few seconds and then a technician said, "You need to take that now because you're exposing us all to radiation." I said another super fast prayer to myself and took it. I got a ton of good lucks after that and was sent home. 

I felt relieved. I was happy. I was ready for the next few days and prepared for the next month. 

Post treatment.
From the hospital, I drove to the store to pick up lemons and sour candy. That evening, I started to feel neck pains and I loved them: a sign that treatment was ALREADY working. I was perfectly pleased. 


Sucking on a lemon to stimulate saliva production

After a couple of days, the worst side effect I was feeling was exhaustion. I allowed myself to rest as much as possible. I did not feel the same level of discomfort that I had during the first post-treatment process, so I was happy. I was also able to get off of my deprivation diet. I remember eating a tortilla chip and being so disgusted by its saltiness. Everything was too salty for about 2 weeks. 

3 days after treatment, I took these photos for reference. My neck was so much smaller. My trachea could actually be seen for the first time, and in a side shot, one could barely see a goiter. 


Throughout January, I felt very tired, but had just enough energy for my home yoga practice 4-6 days a week. I went out with friends occasionally, but mostly, I just rested. By late January, I posted this photo to social media with this caption: 


"Suck it Graves Disease, I have a human sized neck."

In early February, I noticed that my neck moved when I swallowed liquid. It was the first time in 7 years. I actually took video because I was so excited!

Be blessed and be well,
J